Birth Defects Surveillance, Intervention & Referral to Services Program

 
The Birth Defect Surveillance, Intervention and Referral to Services (BD-SIRS) Program is a federally funded program created to establish and enhance a rapid active surveillance of microcephaly and selected adverse outcomes Central Nervous System (CNS) defects with possible association to the Zika virus infection for all pregnancy outcomes (live births and pregnancy losses including miscarriages, stillbirths and terminations) and to use the data for public health monitoring, prevention and intervention.
 
The BD-SIR Program is in the initial process of demonstrating data utilization through collaboration with CDC on centralized pooled clinical and surveillance data projects, referral to services, and linkage and evaluation of outcomes of affected children with a positive or inconclusive Zika virus test. The Specific activities includes the following:
 
Surveillance: To establish a rapid population-based surveillance of microcephaly and other birth defects potentially associated with prenatal or postnatal Zika virus infection using an active case-finding methodology and standard case definition

Capacity Development: a) To build capacity through collaboration with partners and infrastructure improvements, build and maintain appropriate partnership within the CNMI Healthcare Systems including Laboratory, Communicable disease programs, etc.; b) To develop rapid data collection and reporting of both microcephaly and select CNS defects possibly linked to Zika virus and any pregnancy with positive or inclusive Zika virus tests. Also to establish linkages with other programs like Children with Special Health Care Needs (Title V) and Early Intervention to improve access for affected children to comprehensive community-based, family-centered care; c) Identify and engage appropriate clinical partners, especially with prenatal and hospital champions to rapidly report any potential cases.

Referral to Services: a) Connect children and families to health and social services; b) Develop strategies and activities to ensure children with microcephaly and select CNS defects and their families are connected to health, early intervention and social services in the community including a discussion of eligible services the infant/family can apply for; c) Create and implement a plan outlining how the program is working to improve referral to services for affected individuals and families.

Data Analyses and Reporting: To provide support for data analyses to evaluate the data collected and set-up and to participate in centralized pooled clinical case and surveillance projects via secure transmission, meeting deadlines specified by CDC. This includes contribution of anonymized, de-duplicated data to CDC for projects, such as the Centralized Rapid Microcephaly and Select CNS Defects Outcomes Data System and Detailed Case Diagnosis Project with clinical verbatim diagnosis information and to collaborate with the US Zika Pregnancy Registry.

Health & Development Outcomes of Children Identified from the Rapid Microcephaly and select CNS Defect Surveillance System: To ascertain health and developmental outcomes of children with microcephaly and other birth defects potentially associated with Zika virus infection not excluding infants born with no apparent birth defects to mother with positive or inconclusive Zika virus tests during pregnancy and evaluate the methodologies used and quality of data collected.

For more information, please contact Ms. Annie Zandueta, Program Manager at 234-8950 ext. 2926 or via email at This email address is being protected from spambots. You need JavaScript enabled to view it. This email address is being protected from spambots. You need JavaScript enabled to view it.

Please see below for addtional information, resources and guide on What to know about the Zika Virus. 

Zika Fact Sheet and Posters

Helpful Resources and Materials for Zika

Assessment of Infant Hearing for Infants Testing Postive for Zika Virus Infection

Webcast Recordings: Clinical Evaluation & Management of Infants with Congenital Zika Infection

Implementing CDC Guidance for Infant Neuroimaging and infant and placental Zika Virus Testing  

Measuring Head Circumference

Measuring Head Circumference Video

 CDC Guide: Microcephaly and Other Birth Defects

Pediatric Evaluation & Outpatient Management for First 12 Months (pocket guide)

FOR PEDIATRICIANS - CDC US Zika Pregnancy Registry Healthcare Provider Toolkit for Health Departments

Morbidity and Mortality Weekly Report (MMWR) - Zika Reports  

Additional information